Resilience and stress among family caregivers of children and adolescents with disabilities
DOI:
https://doi.org/10.70577/asce.v5i3.1033Keywords:
Family, People with Disabilities, Mental Health, Mental StressAbstract
Caring for children and adolescents with disabilities involves constant demands for support, supervision, and guidance, which can lead to high levels of stress and affect the coping resources of those who assume this responsibility. In the Ecuadorian context, there are few studies that jointly analyze perceived stress and resilience among family caregivers. The objective of this study was to examine the relationship between perceived stress and resilience among family caregivers of children and adolescents with disabilities. A quantitative, non-experimental, correlational, and cross-sectional study was conducted with the participation of 74 caregivers (58 mothers, 9 fathers, 3 siblings, and 4 grandparents) aged 21 to 77 years, selected through non-probabilistic convenience sampling. The Perceived Stress Scale (PSS-10) and the Connor-Davidson Brief Resilience Scale (CD-RISC-10) were administered; subsequently, correlational analyses, nonparametric tests, multiple correspondence analyses, and linear regression were performed using IBM SPSS Statistics version 24. The results show a low but statistically significant negative correlation between stress and resilience (rs = -.301, p = .009); stress is associated with the child’s age and educational level, and resilience is related to the type of disability. Regression models indicate that stress and type of disability are associated with the observed variability in resilience. These findings provide evidence of the importance of the caregiver’s psychological resources and the characteristics of the family caregiving context.
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Adum, M., Tapia, M., Guaranguay, H., y Chávez, F. (2024). El estrés: un desafio para los cuidadores de personas con discapacidad. Revista San Gregorio, 1(Especial_1), 90–95. https://doi.org/10.36097/rsan.v1iespecial_1.3110
Arias, N., Lopera, A., y Ayala, J. (2022). El cuidado de niños con discapacidad, actitudes de cuidadores y madres sustitutas. Revista Ciencia y Cuidado, 19(1), 9–18. https://doi.org/10.22463/17949831.3085
Barreto, W., y Baque, V. (2023). Salud mental en cuidadores informales de pacientes con discapacidades que acuden a centros de atención primaria de salud. Ciencia Latina Revista Científica Multidisciplinar, 7(4), 333–355. https://doi.org/10.37811/cl_rcm.v7i4.6874
Cabrera, M., y Mora, V. (2023). PARENTALIDAD, CALIDAD DE VIDA Y SOBRECARGA DEL CUIDADOR DE NIÑOS Y ADOLESCENTES CON DISCAPACIDAD. https://doi.org/10.29076/issn.2602-8379vol8iss14.2023pp78-89p
Campbell, L., y Stein, M. (2007). Psychometric analysis and refinement of the Connor-Davidson Resilience Scale (CD-RISC): validation of a 10-item measure of resilience. Journal of Traumatic Stress, 20(6). https://doi.org/10.1002/jts.20271
Cevallos, M. B. M., y Álava, V. B. (2024). Examining the influence of parenting styles on caregiver syndrome among parents of children with disabilities in Guayaquil. European Public and Social Innovation Review, 9. https://doi.org/10.31637/epsir-2024-1043
Cohen S., Kamarck T., y Mermelstein R. (1983). A global measure of perceived stress. ournal of Health and Social Behavior, 24, 385–396. https://www.cmu.edu/dietrich/psychology/stress-immunity-disease-lab/publications/scalesmeasurements/pdfs/globalmeas83.pdf
CONADIS. (2021). Estadísticas de Discapacidad. https://www.consejodiscapacidades.gob.ec/estadisticas-de-discapacidad/
Connor, K. M., y Davidson, J. R. (2003). Development of a new resilience scale: The Connor-Davidson resilience scale (CD-RISC), 18(2). https://doi.org/10.1002/da.10113
Domínguez, P. (2023). El sobresfuerzo económico de la discapacidad: una aproximación conceptual. Zerbitzuan, (80), 19–34. https://doi.org/10.5569/1134-7147.80.02
Hazan, B., y Levkovich, I. (2025). The Weight of Loneliness: Family Resilience and Social Support Among Parents of Children with and Without Special Needs. Social Sciences, 14(9). https://doi.org/10.3390/socsci14090531
Lagos, G., Domínguez, K., Luengo, C., Farías, B., y Guzmán, F. (2023). Adaptación transcultural al español chileno de la Perceived Stress Scale-10 (PSS-10) en profesores: estudio Delphi. Medicina y Seguridad del Trabajo, 69(272), 149–159. https://doi.org/10.4321/s0465-546x2023000300003
Núñez, M., Beisso, C., Molina, E., y Rojas, S. (2023). Parental stress, depression and quality of family life in primary caregivers of people with ASD REVISTA ESPAÑOLA DE DISCAPACIDAD. https://doi.org/10.5569/2340
Organización Mundial de la Salud. (2023). Informe de la encuesta mundial sobre las personas con discapacidad y los desastres. https://www.undrr.org/contact-us.
Quezadas, A., Baeza, E., Ovando, J., Gómez, C., y Bracqbien, C. (2023). Educación para la resiliencia, un análisis desde la perspectiva de niñas, niños y docentes. Revista Latinoamericana de Estudios Educativos, 53(1), 155–178. https://doi.org/10.48102/rlee.2023.53.1.534
Rakap, S., y Vural, M. (2024). Mitigating the impact of family burden on psychological health in parents of children with special needs: Buffering effects of resilience and social support. Journal of Applied Research in Intellectual Disabilities, 37(1). https://doi.org/10.1111/jar.13179
Sánchez, J., Rodríguez, O., Sánchez, D., y Cuadrado, G. (2022). Discapacidad: definición, normativa y contexto. ConcienciaDigital, 5(1.3), 234–247. https://doi.org/10.33262/concienciadigital.v5i1.3.2138
Scheibner, M., Scheibner, C., Hornemann, F., Arélin, M., Hennig, Y. D., Kiep, H., Wurst, U., Merkenschlager, A., y Gburek-Augustat, J. (2024). The Impact of Demographic Characteristics on Parenting Stress among Parents of Children with Disabilities: A Cross-Sectional Study. Children, 11(2). https://doi.org/10.3390/children11020239
Seiz, M. (2023). Employment and care in spanish families with dependency situations: dilemmas, practices and costs. Revista Internacional de Sociologia, 81(1). https://doi.org/10.3989/ris.2023.81.1.21.66
Sharifian, P., Kuchaki, Z., y Shoghi, M. (2024). Effect of resilience training on stress, hope and psychological toughness of mothers living with mentally and physically disabled children. BMC Pediatrics, 24(1). https://doi.org/10.1186/s12887-024-04828-6
Soto, I., Domínguez, P., Jerez, B., Reglero, M., Alaminos, M., y Gómez, S. (2021). Resilience as a Protective Factor for Informal Caregivers in Caregiving: A Systematic Review. New Trends in Qualitative Research, 8, 440–452. https://doi.org/10.36367/ntqr.8.2021.440-452
Vázquez, P., Huerta, C., Montero, X., Ruvalcaba, N., y Bravo, H. (2025). Resiliencia en cuidadores primarios informales de personas con síndrome de Down: un estudio exploratorio en México. Revista Inclusiones, 12(3), 138–151. https://doi.org/10.58210/ri3633
Villacorte, M., Chapi, M., y Gordon, N. (2021). Condiciones sociales y psicológicas de los cuidadores familiares de personas con discapacidad. https://doi.org/10.31948/rev.criterios/28.1
Yang, M., Zhang, J., Liu, X., Ma, Y., Jiang, Q., Chen, S., y Zhang, S. (2026). Relationship between caregiver burden and family resilience among Chinese caregivers of people with dementia: the mediating role of mutuality. Frontiers in Psychiatry, 17. https://doi.org/10.3389/fpsyt.2026.1724514
Yildirim, M. S., Firat, M. Ö., Atay, M. E., Yilmaz, D. A., y Dege, G. (2025). Effects of demographic characteristics on burnout, psychological resilience, and family functioning in parents of children with disabilities. BMC Psychology, 13(1). https://doi.org/10.1186/s40359-025-03238-2
Yumpo, C. S., Quispe, M.-C. R., y Rojas, C. E. (2024). Stress level and coping strategies in parents of children with intellectual disabilities.
Zhao, Y., Fan, H., Luo, Y., Zhang, R., y Zheng, X. (2024). Gender Inequalities in Employment of Parents Caring for Children With Autism Spectrum Disorder in China: Cross-Sectional Study. JMIR Pediatrics and Parenting, 7. https://doi.org/10.2196/59696
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